Tag: special needs

Caring for the medically fragile: Still just a child who needs a loving home

Becky Delp and her husband have fostered children in the past, but for the first time, they are providing care for a medically fragile child. Although she had some concerns at first, those passed quickly as she gained confidence in her ability to manage the little boy’s needs and her family embraced him.

At first, I thought: I’m not qualified, I’m not trained.

Andy* needed to be fed through a g-tube when he first came to us. He was born prematurely and spent his first six months in the hospital and then went to a special facility. He had cancer and a weakened immune system. He has chronic lung disease. He needed physical therapy, occupational therapy, speech therapy. It felt overwhelming.

But you’re not on your own. We got training through the hospital and nursing care agency. A nurse stayed at our home every night. Because Andy was under the age of three, his therapy visits were done in our home. We got great support from our Diakon caseworker. Someone was always available to help.

Caring for a medically fragile child does entail extra steps from the foster family. There are lots of appointments. With the nurse there every night, we had to get used to having someone else in our home. But the nurses quickly became like family and their expertise was priceless. As a foster family, you go with the flow anyway.

Special needs redefined

We social workers use a lot of lingo and many acronyms to describe the work we do in the child welfare world.

In fact, that language—most fields, though, have their own jargon—can become confusing to new families as they begin to gather information about the children we place, the foster care or adoption process and whether they want to become foster or adoptive parents or both.

One of the terms we use that people question is “special needs.” Often, when someone hears those words from us for the first time they think about children who are disabled or handicapped, probably needing special educational accommodations. This perception is not, however, what this phrase means to us.